Finally something of a plan!

This morning was something of a handing off... from the Breast navigator to the Oncology navigator...Yes...I have a tentative time to start chemo April 16th. In 8 "cycles" Evey 2 weeks, so I am thinking August I will be done with that. Then I think it's a month to wait for surgery(but I could be wrong) then a month wait, then 6 weeks of radiation...So what is that maybe thanksgiving I will be done!
Things become more real...silver lining...I am going to get the vitamix type blender that I have been wanting! Woot! So until I get yet another anxiously awaited phone call that is what I know.

Chemo...

Okay...so I got a packet in the mail today.
I opened it up and proceeded to read about these drugs that will be put into the "port"
First "The port" this is put in by a surgical procedure into a main artery it will be taken out the same way(in a few months)...
Then the list of drugs, the IV drugs; adriamycin,cytoxan,paclitaxel

And the other to help the side effects;
Decadron & neupogen

So I skimmed them, and then I kinda had a meltdown...then I read them well.
Truly this is a lot to take in. I mean I know I am going to be fine. It's just freaky thinking about having all that mess going in and tripping around my insides!
Now my puppies are sitting with me and Kelly is giving me a bad time lol! So my world is normal around me ,I guess that means it is becoming more real....

Addicted to blogging or Welcome to my train wreck can you look away!

So I decided to see if I googled a lump in my road if it comes up. And I A) am not as clever as I thought and B) there is a blogging site just for cancer people!!! :-) so I started a blog there so that I could get some insight.
Man, there are so many cancers. So many people that have it so much worse than I do. So many that have just what I do and come out the other side! :-)
So there I get more info, more like the support group I guess. Here you guys know me and by the end probably much better!(And even more than you care to lol!)
But being able to put down my thoughts as they come running from my head is not horrible in fact I find it calming...

Danger!! Will Robinson Danger!!!

So the oncology nurse is sending a bunch of stuff. she was going on about each thing she was sending me. But her big deal was don't be around sick people! avoid them at all cost she said... and in retrospect that is a good idea Chemo is the big nasty breaking down everything in its path ...reminds of witch hunts' if she drowns she is not a witch" ( but she is still dead!!!) Kidding! (kinda) Chemo is not for the faint of heart. but until I get my packet I wont know which drugs besides the IV they will have me on...I do know we are talking a few months (yes MONTHS)... I am telling you hurry up and wait sucks!!! So as I have muddled my way through that paperwork I will talk more about it...

Guess what I got!!!

Mom & I went to the wig store!!! So much fun!!! No pics yet because I need to work on them a bit, but, I tried like 5 bought 2 these are not serious wigs but fun ones. I am looking forward to playing with them!

I need to let this go...

I worry so about how Kelly is doing. He won't talk about this...I have the next biopsy and clip put in on the 8th, it will be a long day...I want him there with me! I love him and I want him there...but I don't want this to be harder for him....

Update!

he is going to be with me 4/8 is the lymph biopsy and clip. I will be at Kaiser noon to 6pm that day. I still don't know when the port goes in but I am assuming some time around there. I here from them Monday.

Instructions for posting comments

So I have gotten a couple people telling me it is hard to post comments( I actually am thrilled y'all tried) so I tried here's Watcha gots to do(lol)

It is a weird security thing just click on the comment box and say whatever you'd like to say, then select publish. At this point you have to do one of those I am not a robot things.  Your comment will then post...

Thank you for your interest in my stuff and wanting to interact with me on my journey....

Just another day

Just received a call from the surgeons appointment setter. He will biopsy my lymph nodes 4/8 but I will also get my clip that day 2 procedures seperate! I haven't heard from the people who put in the port or maybe I have was that the ontology lady I talked to??? She needed to know when the biopsy was scheduled...damn... must call Susan get that sorted out. But that is a start date! I also am going to try to get my chemo on Wednesday afternoon's so I have time to recover maybe start early that day...

Ramblings

So apparently as I read back and boy am I unclear on some things so here you go...
my next biopsy is on my lymph nodes and they will clip the lump.
That really isn't bad they numb me up so I don't feel anything ice packs help a lot(thank you Denise for that heads up!)
Scrolling hasn't called but it will probably be sometime next week.
And the port, I only know that they put it in your chest and it stays in until chemo is totally done.
Kaiser is sending me a chemo packet to let me know all about my chemo journey woo hoo!
So there you go... feel free to ask me questions. I well tell you what I know

Group...is this a good idea

Susan(my breast navigator) said there was a group. I had time...I was feeling down having just found out I had to have chemo...so why not!(my life approach this last year)... I sat down in a room of women in various stages from just having surgery days before! To nearly a year out(and just getting there hair back) some having to go through it again... introduce yourself the social worker said I did and I started to cry...damn...but I also listened and asked questions...I will go back

PET scan dun dunndunn da! Installment#4

PET scan 7 tries to get the IV in! My bad veins...blood draws now...soon food!!!....4 days pass no results!...then...
Well the tests are in ...I have to have another biopsy they will put in a clip and a port. The port is for chemo which I will be starting sometime after the biopsy. I am not sure at this point when. The clip is so they can see the progress...and it looks like my ride begins

Meeting the surgical Team installment#3

I was really excited about going to this appointment! The doctors were all great! And my breast nurse who in fact up to this point made me crazy! Was actually very nice! But I had a plan and I wanted to have the least amount of impact on my clientele possible...I came out frustrated yet another test!

Biopsy installment#2

My clients that are in the field were so very helpful they told me what to expect which was immensely helpful and what to do after to stay comfortable...but this was how I actually found out it was in fact cancer.
Invasive Ductal carcinoma (stage2)
ER and PR positive(that's good) HER2 neg(mostly) that was the problem...

the beginning of my journey or why did I go to the doctor?

I said to my husband(husband because after 21 years together we recently married so I would have insurance)" you can now go to the doctor" he said " I will after you do" (I have not been for other than random incidents for 25years) SO I said "done!" The next day with my new found insurance I made appointments and off to the doctors I went...New fangled insurance computer kicked out all the test that a women of my age should have including but not limited to a mammogram. I have several clients that are mammogram techs and even though I had never had one, I wasn't scared or even concerned..  the mammogram itself was like Boob twister it didn't hurt our was not really uncomfortable it was amusing! Breast on plate plate now lean in, now turn your head, now tip head back, is your arm steady, compresses  plate. Hold! :-) they said 2 weeks for results...2 days later they called, you need an ultrasound ...still unphased, I set up this next appointment(they need a base line I have never had this before) my dogs were in the car we were going hiking after... so ultrasound tech was stoic(seriously I can make anyone laugh she wasn't having any of it) she finished said she'd be back not to get dressed right yet...okay...she comes back says the radiologist wants to see me...okay...get dressed another girl takes me to the radiologist(at this point I am chatting with the new girl I am still la tee da...I sit in front of the radiologist she has my mammogram and ultrasounds up on her screen(my breast look so cool!) Then she says" this is a cancerous mass. these are the reasons I believe this" and she keeps talking! And I here the Charlie Brown teacher voice...in my head...I am thinking "have to tell Kelly I have cancer"....meanwhile she says"you need a biopsy" we have these two times I said well the first(which was right away) wouldn't do I have clients that day I chose the second 2 weeks out...my second thought(how am I going to make this work for my clients!) Yes I am CRAZY!... Kaiser calls the next day " Why is your appointment so far out?" we moved it...